33. #RespiteforParents

My husband thought getting the children looked after by anyone else was a no-no.  But certain organizations can do in home help/care. So that is great and preferable to me  and DH. It took a long time to organize.

At the time I had just got accepted to the National Disability Insurance Scheme so was pleased to be able to take my son to the Occupational Therapy and Speech Therap/Psychology that he needed. I spent allot of time driving the kiddo to alot of appointments plus home duties and school. DH was at home looking after the younger son.  I remember that DH got ill, some atopic virus that no-one knew anything about, and had to go to hospital, I remember my Mum was just out of hospital for a serious issue. And a few months later my father was to be admitted to hospital for  cancer.

While I called around and kept on making repeat phone calls to ask for appointment times some agencies weren’t prepared to do respite with Autistic kids. Either they don’t have the training for it or they are just not set up for it.

When I finally did get some help organized it gave me a few hours where I did not have to worry about the children. Where I could do something for myself.  Finding good carers trained in Autism is hard, when you have a good one, you don’t want to give them up easy.

My husband and I thought sending the children away to a variety respite house was too weird and uncomfortable, it’s too out of our parenntal control. We can’t see the children or check up on them. So things are good at the moment.

Autism Respite assistance:

AutismSA respite services, has a respite house and does in home assistance

Anglicare also do in home assistance and have a respite house for short stays and they have school holiday programs.

Domestic help with DirectCare who also do in home assistance

“MyTime” for Parents support group funded by Australian government, eTrinity Gdns group on a Wednesday morn

Carer Support agency has Parent Support group once per month

 

 

Written and Authorised by  Jane Muras, 4 Henry st, Hectorville, SA 5073 Candidate  for Hectorville Ward CCC 2018

 

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