#Autism School pickup

It’s nice dropping him off at school in the morning and he stays all day till nearly 3 pm. I’m not worried about the boys and I know they are being well cared for.

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#Clothes

He must wear the exact same clothes every single day to “feel right”! He tells me all the time. It means I must wash every night, thank goodness for the dryer. He has to wear his clothes to bed because it is too stressful to go through the sensory hell of putting them on in the morning along with having to eat breakfast. He always has toast with tomatoe sauce or plain rice bran butter, sometimes nutrigrain.

#SortaSuperMummish

I am trying to do the best I can and do all the things that need doing to stay #SortaSuperMummish. I have had a cry because I can’t fulfil the expectations of my own ego. I remember my Dear Dad who is no longer with us telling me to brush my teeth, look after my teeth. I have had a cry to my own Mum who points out that it is not the end of the world, it’s just a filling. Well, 8 actually. The kids going to have a mouth full of metal, I’m sure of it. We joked when he had his first Dental work that this was his pirate tooth, and he showed it off. We were all proud of his pirate tooth. If you have it then flaunt it right. I didn’t expect the trend to carry on. My husband pointed out there is far worse conditions so I must be thankful we have hopefully nipped it in the bud, or the rather large holes in his molers to prevent the nerve becoming exposed.

My Bundle of Joy was really good with his Dental work today, the dentist did allot of work, she had to numb his mouth with a needle and drill and Wow, he let her do it. Unfortunately, he has 8 fillings in his mouth at the moment, not because I don’t care about brushing. He has visited the dentist three times. At the end of his appointment the dentist told me she had to do four fillings which is two more than we thought. He handled it really well, my brave boy.

The dentist has told us to stop with the fizzy drinks as carbonated water and sugar effect the teeth, if he has a soft drink, then we have to wash his mouth out with water. We are to limit sweets. Well, he loves the donuts!  If he eats a sweet with sugar he has to brush and floss because he has soft teeth. His teeth are first teeth. Baby teeth, and you would think this does not matter if he loses a tooth or two because he will get new ones. But having the teeth there shape his mouth for the next teeth apparently.

So I put my hand up for being the worst mother in the world. Feeling completely incompetent that I find it hard to argue with my little sweety-pie about  that he has to brush his teeth. I insist and check up and when we found out he needed to floss well, then he did. or I did or his father did. Before 9, months ago we were only brushing once a day and I thought that was enough but no! We ramped it up to fit twice a day brushing in. How to fit it in! I’ve got a problem solving mind, we will take spare brush and tooth-paste in car on the 50 minute drive to school.

And now we must floss as well because it’s not enough. I insist that he must brush, he gets all stroppy not letting me, “Ok, no more iPads!”. Which is the mantra used in my house to get malleable children. “Oh noooo!”. The kids protest and reluctantly do as they do not want. Everything takes one million years.

Trying to educate the young Oscar about the importance of looking after his teeth is hard. He says he does not care. I tell him that he will care once his tooth has rotted so much his nerve is exposed. That is a great pain indeed.

I do remember some years ago it was identified the first time he had some filling work done, he had to see the paediatric dentist who sent him to the Wakefield hospital so he could be put under a general anasethetic to get the first filling done because some decay had been detected.  We were wary of it. I remember we could not commence with procedure on the specific set date because he had a cold which was a contra-indication for surgery We had to go back a second time. While my bundle of joy was having the procedure Mum and Dad had a coffee downstairs. We were back with him when he opened his eyes to love the little cherub.

 

 

The gloves, play the piano and move your fingers

A few years ago bandaids and gloves had to cover his hands. It seems that he had scraped  his hands at school which for Zak at the age of 7 years and higly sensitized to his environment, he had only just returned from a trip to Darwin. But then he came back to Adelaide weather and because he had scraped his hands he had somehow decided that he would cover his hands with bandaids. He used allot of bandaids. He went through allot of packets. The school sopoke to me several times about the amount of bandaids he was using and could he please bring his own suppply as they needed to keep a supply for other students as well. He used to wear the bandaids for many days and would not want me to change them. One day I took off a bandaid and found that the sticking plaster was causing a rash on his skin. This was not helping at all. In an effort to  think about how to prevent him using so many plasters I thought I had come up with a brainwave. I would substitute the bandaids with gloves. This turned out to be not a solution at all.

He loved wearing the gloves. He wore them non-stop for 3 months. Eventually I worked out that I could not buy just any old glove with a mixed fabric material. The material had to be cotton and it had to breathe.  My sons hands got sweaty from wearing the poly fabric gloves and he did not have the will to explain this to me. One day I finally got his gloves off of him to find  his skin peeling . This upset me greatly, I was not going to sit by and let this phobia he had hurt him so I changed gloves. I realized the material used to make the gloves was making his hands sweaty. Boy oh boy,  was it hard to find cotton gloves. In an effort to dry wet gloves we used a blow dryer, this had a warming effect on the glove also.  It seems that he also thought he had horrible hands possibly because they felt extra sensitive. An extra teacher was called in at the time to help him understand how he was feeling. Constant wear of gloves poses a few problems when it comes to washing the darned things.

I didn’t understand what was happenning only that I wanted him to be comfortable, Then it seemed to occur that because it had grown cold during the winter months that the gloves had to be warm when he put them on, so they were dried in a certain section of the house before he put them on to go to school. This went on for quite some time  or there would be loud protestations from Junior. Well, requests to dry the socks started happenning at school, when he was due to come home from school, and the hair dryer – oh the hair dryer! I just determined I would not put up with it any more and I told him that I was not going to do it any more. He screamed and shouted at me about it because I wasn’t, I guess, assisting the set routine. I did not want him to stop using his hands so we started on the path of challenging him to work his hands and fingers on the piano. Hopefully music will do the trick.

Nanna goes to Italy

I must say that I am abit worried about Mum flying on the plane but there is nothing I can do about it, she is determined to go to Italy. I hope she will be alright although she is going by herself. It would cost too much moneyfor us to go to and I don

t even have Oscar’s passport.

35. #Autism Power of Laughing and a loving family life.

I love laughing with my son’s. It’s one of the things I treasure about my family. We all laugh. Laughter is the best medicine to heal all wounds.

It’s absolutely freezing outside right now! I want to create a big marshmellow which is my home. I bought a bag of marshmellows last night for all of us to roast on the fire. The home of my children. With my husband and pets. I want the grandparents and friends to come over on a weekly Sunday morning breakfast. I have this. Immediate family and extended on the weekly catchup brekky.

Most of all I want to create a place where my boys can thrive because I accept you as you are. Where it is ok to be how you are and who you are. Who you are may be different from everybody else and you know what. That’s ok! Whatever differences you have, well I just love it. I can’t do anything else, I just can’t.

The worlds a tough place and home needs to be a spongey trampoline that we can bounce around on and have fun. Because we do. We have so much fun at home. We like our home, sometimes I don’t understand why you don’t want to get out the door to go out, but I do understand that home is the same. I know your need for sameness and your anxiety shows up when things are different. I just want to be Mum, because I love being Mum. All my life I wanted to be Mum and for the last 9 years  I finally have been. What a journey of highs and lows. I want to love every minute of it. I want to treasure it and sometimes things are so tough you want to run the other way! But I gotta love that too.

I encourage my son to exercise. My son was telling me the other day, “Mum, it’s so beneficial to play the X-box because you can get this great exercising of your thumbs, it helps with my core functioning!”. My son has been having lots of discussions with his class teachers about how much he wants an x-box, and what an asset an x-box would be at his school. As far as my son is concerned the school needs an x box. You know what! The kid is going to do great at debating because when he gets going you can’t shut him up. I love you son. And while this may be the case! I was referring earlier in the paragraph to him doing pushups and situps to strengthen his whole body.