Horse riding and D2 Immersion Therapy

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My wonderful son, my no.1. In his own world under the water, with Immersion Therapy. The  company is called ‘Determined 2″ or “D2” for short. A place where the sounds are suspended and the only sound to focus on is the sound of your own heartbeat. Under the water. Excited to go and looks forward to it.

I believe. He likes to wear his wetsuit which is tight. A firm pressure sensation for his body. I’m relieved that we found it. A place where we can walk under water. Self confidence is getting better. Great to see. I am glad we found this organisation to  his sensory needs. It has been an. Effort to  start this routine. Hard on me. But I have wanted so much to help him find something that he loves to do. That is his. Something he can relate to and be proud. (Perhaps he just wants to get time off school!) It could turn into an occupational interest down the track.

I am happy. No. 2 Kiddo is finally able to participate in horse riding activities  through another organisation as he loves it. It seems to satisfy the stim that he has. Horseriding addresses the pressure that he needs when seated on a horse. I originally thought satisfying this stim this activity was not possible. It is possible. We have found a way to do it through exploring resources. Although 6 months later he wanted to swim more than ride a horse.

Both boys were riding horses last week. Honestly I think it is one of the best activities to do and learn. I am very pleased. It has been hard work researching to find these activities that are relevant to my children. I am so very pleased that they are doing them.

Horse riding and D2 Immersion Therapy

 

Clothes

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My dear son. He must wear the exact same clothes every single day, to “feel right”! He tells me all the time. He has to wear his clothes to bed. It is too stressful to go through the “sensory hell” of putting them on in the morning along with having to eat breakfast. He always has toast with tomato sauce or plain rice bran butter. Sometimes Nutrigrain. He has decided to try to eat a variety of foods in the last year of so. But now, some years later, he is quite a food explorer.

Clothes

Autism and the Dentist

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“No more iPads!”. Which is the mantra used in my house to get malleable children. “Oh noooo!”. The kids protest and reluctantly do as they do not want. Everything takes one million years.

I put my hand up for being the worst mother in the world. Feeling completely incompetent that I find it hard to argue with “the apple of my eye” about: he has to brush his teeth. I insist and check up and when we found out he needed to floss well. Then he did. Or I did.  Or his father did.

Trying to do the best I can. Trying to do all the things that need doing to feel “Sorta Super Mum-ish”.  Am I doing too much. I have had a cry because, I can’t fulfil the expectations of my own ego. I remember, my dear Dad, (who is no longer with us). Telling me to brush my teeth. He told me to look after my teeth.

I cry to my own Mother. Nanna to the boys! She points out that “it is not the end of the world”. It’s just a filling. Well, 8 actually!

The kids going to have a mouth full of metal. I’m sure of it.

We humored ourselves when when he had his first dental work that this was his pirate tooth, and he showed it off. We were all proud of his pirate tooth. If you have it then flaunt it right! I didn’t expect the trend to carry on. My husband pointed out there is far worse conditions so I must be thankful. I must be grateful even!  We have hopefully nipped it in the bud or the rather large holes in his molers to prevent the nerve becoming exposed.

“My Bundle of Joy” was really good with his dental work today. The dentist did allot of work. She had to numb his mouth with a needle and drill.  Uuggg!!!! And he let her do it. 8 fillings not because I don’t care about insisting on brushing. He has visited the dentist three times. At the end of his appointment the dentist told me she had to do four fillings which is two more than we thought.

Dentist orders: Stop with the fizzy drinks as carbonated water and sugar effect the soft gums and teeth. If he has a soft drink, then we have to wash his mouth out with water. Limit sweets. Well, he loves Donuts from Coles!  If he eats a sweet with sugar he has to brush and floss because he has soft teeth. First teeth. Baby teeth. You would think this does not matter if he loses a tooth or two because he will get new ones. But having the teeth there shape his mouth for the next teeth apparently.

We ramped brushing up to fit twice a day. How to fit it in!

And now we must floss as well because it’s not enough. I insist that he must brush, he gets all stroppy, not letting me.

Trying to educate the boy about the importance of looking after his teeth is hard. He says he does not care. I tell him that he will care once he feels the pain of a rotted tooth. That is a great pain indeed.

I do remember some years ago it was identified the first time he had some filling work done. We had to see the peadiatric dentist who sent him to the hospital so he could be put under a general anaesethetic to get the first filling done because some decay had been detected.  We were wary of it. I remember we could not commence with procedure on the specific set date because he had a cold which was a contra-indication for surgery We had to go back a second time. While my “bundle of joy”  was having the procedure Mum and Dad had a coffee downstairs. We were back with him when he opened his eyes to love the little cherub.

Autism and the Dentist

https://janemuras.com/2017/11/09/sortasupermummish

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Autism Power of Laughing and a loving family life.

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We laugh together as a family. The thing I treasure about my family. We all laugh. Laughter is the best medicine to heal all wounds.  Anxiety shows up when things are different. I just want to be Mum.  I love being Mum. All my life I wanted to be Mum and I am. What a journey of highs and lows. I love every minute of it. I want to treasure it and sometimes things are so tough you want to run the other way! But I gotta love that too.

It’s winter and absolutely freezing outside right now! I want to create a big marshmallow home. I bought a bag of marshmallows last night for all of us to roast in the pot belly fire. The home of my children. With my husband and pets. I want the grandparents and friends to come over on a weekly Sunday morning breakfast (hubby putting up with in-laws). I have this. Immediate family and extended on the weekly catchup brekky.

Most of all I want to create a place where my boys can thrive. I accept you as you are. Where it is ok to be how you are and who you are. Who you are may be different from everybody else and you know what. That’s ok! Whatever differences you have, well I just love it. I can’t do anything else, I just can’t.

The worlds a tough place and home needs to be a spongey trampoline that we can bounce around on and have fun. Because we do. We have fun at home.  I don’t understand why you don’t want to get out the door to go out. What is it!  I do understand that home is the same.

I encourage my son to exercise. “Mum, it’s so beneficial to play the X-box because you can get this great exercising of your thumbs, it helps with my core functioning!”.

There has been having lots of discussions with his class teachers about how much he wants an x-box, and what an asset an x-box would be at his school. As far as my son is concerned the school needs an x box. You know what! The kid is going to do great at debating because when he gets going you can’t shut him up.

 

 

Navigating social interaction and holidays

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When my dear son was very young, maybe 5 years old, he went bouncing on the jumping pillow at a Caravan Park,  on a holiday. He wanted to bounce all the time I remember him wanting to watch prerecorded Bear Grylls videos over and over again as if they were instructional video’s on skills needed to face the day.

I remember him playing on the jumping pillow at the caravan park holiday and he found some boys to hang around with. (My son naively  thought were “his (said) friends”) These neuro-typical boys clearly found him an annoying tag along and made fun of him. This made me angry. My son did not recognize any unkindness in these boys,  he wanted me to go away. I cautioned my son. I wanted to protect him but also realizing that he had to find his own way in navigating this social interaction.  The kids were mean to him.  They made fun of him and took advantage of my son’s naivety. My son was so young and couldn’t understand that they weren’t being kind and playful. He could not understand that they were not looking after him. Navigating social interaction and holidays

Sub catgory list of earlier post/topics

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53. Autism and Problems at Mainstream school.

52. How did the kid learn to read so early?

51. Autism: Sensory Processing Disorder and Socks!

50. Murphy’s Law! Today: It’s ones of those days!

49. Autism Siblings.

48. Writing for writing’s sake!

47. Car Troubles and Laughter!

46. Comedy Radio, Laughing and walking to school!

45. Mum! Stay still I am putting a chip up your nose!

44. The 5 year old.

43. Let’s take our Xbox controller to school!

42. Autism and the 2 km walk to school!

41. Where is the demarcation line?

40. My son wants an X box!

39. Life in another Language: Auditory Processing Disorder.

38. Drama and the kiddo!

37. Don’t Let The Bastard’s Get You Down!

36. Useful Bedtime techniques for our kids.

35. Laughing and a loving family life.

34. Calming ideas for a stressed out kiddo.

33. Respite for Parents.

32. Feeling Isolated, Parental Depression, Feeling overwhelmed!

31. Autism: Clothes and Socks.

30. We have to trim your nails: “No Way Mum!”

29. “Can we wash your hair?”

28. Autism: Gloves and Bandaids.

27. Autism: Shoes, Socks and Clothes.

26. Cost of Education and Autism.

25. Swimming week 2014.

24. Autistic Meltdown 2014.

23. Diagnosis Days 2014.

22. Autism and School Socialization.

21. Why? Why? Why? Diabetes 2!

20. 9 yr old. I want an X Box.

19. Real life experience in the caravan.

18. Singing lessons? Martial Arts?

17. IPad Parental controls and Daily household chores.

16. 3rd pregnancy: Miracle Baby Jack.

15. 2nd Pregnancy: Miscarriage.

14. “No, I don’t know want to take my shoes off!”

13. Pregnancy no. 1: Birth of a miracle boy.

12. How to Survive on a camp trip with Bear Grylls!

11. Understanding signs and symptoms of Disgraphia.

10. “New Shoes! It’s Groundhog Day!”

9. Useful resources: Autism Support Groups/Reference books/films.

8. I am so proud of my Autistic son.

7. Autism and bedtime techniques.

6. Law mowing and being tired!

5.Writing therapy for parents.

4. National Disability Insurance Scheme (NDIS) and coordinating therapies.

3. Ok! Let’s talk about Autism, Poo, Toilet training and Sensory Processing Disorder.

2. Ok, let’s talk about Autism: Fixation and Obesessive Compulsive Disorder.

1. A full on Meltdown: I did not expect!

 

 

Autism Parents/Carers – Look after yourself Too! Are you?

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It is really important for parents/carers to look after themselves. The Austism journey is a hard road to find yourself having to go down.. I feel defeated by Obsessive Compulsive Disoroder traits at times. But you are not alone. The, Children with ASD & Disability website may be of assistance. Find a suppport group, go for a run, do what you need to do to have a relaxation. It’s so important for your own peace of mind. Painting is excellent. Go for a walk. Swim. A calm place just for you. Essential oils. Massage. Gardening. There are so many things pressing on your time. Being calm in all this is what will get you through. I get stressed. Your child is still your child. Your love is still your love. The importance of having fun with your child and sharing a smile and laughing. It’s everything to me. “raisingchildren.net.au’

#Autism Parents/Carers – Look after yourself Too! Are you?