#Sub categories list

 

53. Autism and Problems at Mainstream school.

52. How did the kid learn to read so early?

51. Autism: Sensory Processing Disorder and Socks!

50. Murphy’s Law! Today: It’s ones of those days!

49. Autism Siblings.

48. Writing for writing’s sake!

47. Car Troubles and Laughter!

46. Comedy Radio, Laughing and walking to school!

45. Mum! Stay still I am putting a chip up your nose!

44. The 5 year old.

43. Let’s take our Xbox controller to school!

42. Autism and the 2 km walk to school!

41. Where is the demarcation line?

40. My son wants an X box!

39. Life in another Language: Auditory Processing Disorder.

38. Drama and the kiddo!

37. Don’t Let The Bastard’s Get You Down!

36. Useful Bedtime techniques for our kids.

35. Laughing and a loving family life.

34. Calming ideas for a stressed out kiddo.

33. Respite for Parents.

32. Feeling Isolated, Parental Depression, Feeling overwhelmed!

31. Autism: Clothes and Socks.

30. We have to trim your nails: “No Way Mum!”

29. “Can we wash your hair?”

28. Autism: Gloves and Bandaids.

27. Autism: Shoes, Socks and Clothes.

26. Cost of Education and Autism.

25. Swimming week 2014.

24. Autistic Meltdown 2014.

23. Diagnosis Days 2014.

22. Autism and School Socialization.

21. Why? Why? Why? Diabetes 2!

20. 9 yr old. I want an X Box.

19. Real life experience in the caravan.

18. Singing lessons? Martial Arts?

17. IPad Parental controls and Daily household chores.

16. 3rd pregnancy: Miracle Baby Jack.

15. 2nd Pregnancy: Miscarriage.

14. “No, I don’t know want to take my shoes off!”

13. Pregnancy no. 1: Birth of a miracle boy.

12. How to Survive on a camp trip with Bear Grylls!

11. Understanding signs and symptoms of Disgraphia.

10. “New Shoes! It’s Groundhog Day!”

9. Useful resources: Autism Support Groups/Reference books/films.

8. I am so proud of my Autistic son.

7. Autism and bedtime techniques.

6. Law mowing and being tired!

5.Writing therapy for parents.

4. National Disability Insurance Scheme (NDIS) and coordinating therapies.

3. Ok! Let’s talk about Autism, Poo, Toilet training and Sensory Processing Disorder.

2. Ok, let’s talk about Autism: Fixation and Obesessive Compulsive Disorder.

1. A full on Meltdown: I did not expect!

Written and Authorised by  Jane Muras, 4 Henry st, Hectorville, SA 5073 Candidate  for Hectorville Ward CCC 2018

 

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28. #Autism and #Sensory Processing: #Gloves and #Bandaids

Dear Mums! If you think bandaids and gloves are a good idea to cover hands: think again as the glue on the underside of bandaids can irritate kiddos skin if left on too long. Leaving gloves on can also make hands sweat depending on material of glove. The kid does not get the sensory input from using bare hands.

My experience  with my kid is this:  The kid would have a minor abrasion on hands or other body parts and a bandaid would have to go on to cover. This happened again and again until we were going through so many packets of bandaids. Kiddo would not like to take the bandaids off either but preferred to leave them on. So: doing regular maintenance health check Mummy notices the bandaids are getting old and dirty and there is quite allot on the kids hands. This was not a good look. I find out that the bandaids are there to cover minor scrape and falling injuries (nothing to worry about but very) hyper painful to the kiddo. Mummy also notices that skin is peeling and irritated redness on fingers underneath the sticking part to bandaid.

Being a kid with Autism and sensory challenges is not easy by any means. The bandaids are kiddo’s attempt to armour himself (with bandaids) against an abrasive world. I understand this, but also not wanting the bandaids to get out of hand and turn into a fixation or Obsessive Compulsive thing I limit supply of bandaids. I’m also “caught between a rock and a hard place”  because I don’t want to injure a developing self esteem and self preservation ideas in kiddo.Its a double edged sword. I look for alternatives. I think, well its cold and winter is coming on and the obvious solution is the wooden gloves for winter.

I thought it was a great idea . So kiddo wore them everywhere, at school, at home, to bed. The hand was warm and protected in the glove. He was happy. I thought it was a great solution until  I realised that getting the glove off him for washing was going to be a big deal. We eventually worked out that I was to wash the gloves at night when he was in bed. HE was to take gloves off while in bed to let the skin on his hands breath. If I didn’t wash them at night then there would be problems.

If you are going down the glove road with your child just beware that if the fabric of the glove is made of a polyester or polyfibre then your child’s hands are more likely to sweat underneath. This can be a breading ground for bacteria leadings to infections if not properly maintained.

To avoid this hand sweat thing kiddo would clap hands and demand that Mummy blow dry them at a certain place in the house many times a day. I got sick of this quick as it became time consuming and not functional in the daily routine. I tried to envisage myself doing this routine for a long time and I just did’t like what I saw. So that moment, I just said “No I am not doing this any more!” I got all the pairs of gloves from that had accumulated in the house and I drove to a bin somewhere, I don’t know where, and I just dumped them in the bin and went to my piano class. I did this in full view of my kiddo so he could see there were no more gloves ever to be in this house again. Kiddo did not like it one bit.

Written and Authorised by  Jane Muras, 4 Henry st, Hectorville, SA 5073 Candidate  for Hectorville Ward CCC 2018

 

 

26. #AutismandCostofSpecialEducation

It is my understanding that there is atleast 3400 students with autism in south australia and rising. The government of South Australia has let the Aspect Treetops Autism specific school use the old Ashford Special School site at a peppercorn rental. The local school zoned in our area means that there are government subsidies available to help pay school fee’s. Does this apply the same at Ashford? Can I apply for the School-card? What subsidies are available to me in my situation? How much transport assistance can I get for my child? Is there long distance education?

The facts are that you can’t go to this Treetops Aspect Special School if you don’t have atleast $232/wk spare cash and thats for 1 child. If you have two children then its $500 approximately. This is compared to $40 per week for Services and materials charge at the local mainstream school. It’s prohibitive for a large number of Austistic families because they simply do not have the cash.

The thought of HomeSchooling has always been around but not something I have wanted to get excited about! I don’t know it! Although, when I was a kid I did corrospondence schooling for a while. So how much money can I afford out of my budget to send my children to a school specifically oriented to teaching kids on the Autism Spectrum? I am excited about the Satellite Programs the Aspect treetops Autism School is proposing and the Distance education Proposed Program. The issue is how to pay for it?

It seems that the affordability of education equates to class sizes! Am I wrong? Does a kid with Autism who prefers to be by himself need socialization? I think I as a parent need to make our living arrangements bearable for both parent and child.

What happens to a child if they are bullied at school? Bullying and its effects at school have been well studied. Nobody wants that for their child to go through hard times. What is the criteria for entry point to Department of Education Autism Intervention Programs at Blackwood Autism Intervention Program and the Heights Autism Intervention Program, Modbury, Adelaide? What is the criteria for entry to the Aspect Autism Treetops School at Ashford, Adelaide? Would Montessori be good? Tick it off, for a try. What about Steiner education? Not that fussed about it! It can be overwhelming to consider. Do I want to stick my head in the sand about it? Do I have the energy to get excited about the idea?

The school fees at Treetops are in the order of $10,000 or so PA which may be prohibitive for 90% of ASD cases as it may be more unaffordable for those on lower incomes. $200 per week for 1 child. How much does it cost to educate a child in a Department of Education school?

 

Written and Authorised by  Jane Muras, 4 Henry st, Hectorville, SA 5073 Candidate  for Hectorville Ward CCC 2018