My husband thought getting the children looked after by anyone else was a no-no. But certain organizations can do in home help/care. So that is great and preferable to me and DH. It took a long time to organize.
At the time I had just got accepted to the National Disability Insurance Scheme so was pleased to be able to take my son to the Occupational Therapy and Speech Therap/Psychology that he needed. I spent allot of time driving the kiddo to alot of appointments plus home duties and school. DH was at home looking after the younger son. I remember that DH got ill, some atopic virus that no-one knew anything about, and had to go to hospital, I remember my Mum was just out of hospital for a serious issue. And a few months later my father was to be admitted to hospital for cancer.
While I called around and kept on making repeat phone calls to ask for appointment times some agencies weren’t prepared to do respite with Autistic kids. Either organisations or they don’t have the training for it or they are not equipped with the appropriate resources.
When I finally did get some help organized it gave me a few hours where I did not have to worry about the children. Where I could do something for myself. Finding good carers trained in Autism is hard, when you have a good one, you don’t want to give them up easy.
My husband and I thought sending the children away to a variety respite house was too weird and uncomfortable, it’s too out of our parenntal control. We can’t see the children or check up on them. So things are good at the moment.
Autism Respite assistance:
AutismSA respite services, has a respite house and does in home assistance
Anglicare also do in home assistance and have a respite house for short stays and they have school holiday programs.
Domestic help with DirectCare who also do in home assistance
“MyTime” for Parents support group funded by Australian government, eTrinity Gdns group on a Wednesday morn
Carer Support agency has Parent Support group once per month
Don’t you hate it when you get up in the morning. You did not sleep that great! And there is this piercing/jabbing pain by your right shoulder, and when you raise your shoulder blade to test it out ouch! Oh I need to do some movement exercises I need to get a wheat bag on that. I need to take a panadol for that. And you don’t because you forgot because you get up and do the regular motions and all the time there is this niggling pain in your shoulder. You have to go through the action sequences of morning routine w/time management skills too! I’m thinking maybe my shoulder is linked to Tennis elbow, hell! I don’t even play tennis! But you know I had the same thing before when I was only carrying my baby so ……yeah! Chew on that!
Wow! I have been down in the dumps about how hard it is being a mother of two kids with Autism.
I have felt like a robot.
I was just going through the motions of daily life because I had to keep things going. While I wanted to fall apart and just stop! Trying to keep my ship afloat with all my family in it.
Trying to keep the bills paid and buy the food as well as get the petrol for the car.
Trying to encourage my children to actually be social and play with other children. It has taken some time.
Or even quite possibly be on time to school, which much to the kids credit they do try hard to do what I say and we are at school, on time, allot of the time.
There just does not seem to be enough time. Does this cycle ever stop!
And it is nobodys fault there is no-one to blame or thank for my hardship! I decided to have two children and was lucky enough to be able to.
It’s just bloody well hard.
Rushing out to the shops to buy groceries or trying to fit in picking up wood from the woodshop for the fire inbetween drop off or picking the kids up from school and something else! Always having one million things that could be done. Being tired, needing a rest but not being able or feeling able to. I prefer to do the shopping by myself as when I take the kids they always want something. I don’t have enough money to buy anything in the shop for them.
Not being able to get a goood nights sleep because the boys Nanna or Grandpa are having health issues and hospitalizations or clinic appointments. Or Hubby has gone to hospital for something. The support base is crumbling away from me at times. What to do? Well I recognize that we all need to take care of ourselves so I got respite care services in to help.