Hello again! I have been trying to think about: “what can my son do with this extroadinary gift he has?
I thought “Well, you certainly get the Autism melt down cry going so can we train your voice into it sounding actually pleasant?” The Autism cry is shrill and kind of like the effect of a mosquito buzzing around your ears when you are really tired and trying to sleep. Raising your panic/stress levels. Singing Lessons only lasted 3 times but Brian Gilbertson, Opera singer taught DS1 how to feel the sound of his own voice by laying on the wooden floor and humming which is a self soothing technique to remember.
We started learning Piano together so DS1 would strengthen/use his hands. When we play I hoped DS1 could feel the vibration of the piano strings resounding in the Piano.
I thought “Well, if you must do repetitive actions as a means of self soothing well then lets start Martial Arts, Karate Jitzu. Lets practice your Kata’s every day, lets do it together. This worked for 7 months and then DS1 is on a break from Karate. I am hoping that DS1 and DS2 will start back at Karate.
I’m so happy, I went to SERU, the Special Education Resource Unit. I was shown how to put limits of time on the IPAD. I’ve put parental time controls on iPads and computer and my DS1 knows that he must do chores to earn rewards so he just mowed my Lawn which is excellent for his upper body strength, sense of self satisfaction, also strengthening his hands. Way to go DS1. All good for executive functioning. Mowing the lawn is good, relaxing, chop wood, get on the rowing machine, repetitive movements using energy and build strength.
Hard work trying to get pregnant. Hard work after they are born. Jack is born. I am delighted, I know a bit more about babies. Right from the very start of my son’s life he cryed and cryed signalling some sort of distress. My goodness sometimes he was like a little red beetroot.
His skin was so itchy, he scratched all the time. He scratched his face ripping his skin got infected with a bacteria. Antibiotics were needed from the Dr to control this. Tired parents. Afraid that baby would scratch himself so severely. My grandmother used to bind my hands when I had chicken Pox so I would not scratch. In desperation, I bandaged Jack’s hands , and lovingly put mittens on his hands preventing scratch. It was not until another mother said, that it looked like Eczema I was prompted to action. Off to the Dr.
Called the hospital everyday to try to get an appointment to see the specialist. Skin prick tests and more tests and I got creams and lotions. Stopped drinking cow’s milk so it would not come through my milk, started to drink Soy milk. The Dr said that by bandaging him for 20 minutes a day in wet cloth so the moisture would absorb in the skin would be a good method. I wet bandage mummified my baby 20- minutes a day.
Jack was born and did not grow hair for the whole of the first year. What happened instead the hard scabs would grow on his head. His father and I peeled off in the bath every day. It was visibly distressing to look at. I had never seen it before and didn’t know this sort of reaction. With a bit of research I understood it was the bodies protective mechanisms trying to cope with this skin condition. Wary of Cortizone prescribed by the Dr. Parents at the end of our tether. We didn’t know what to do. We asked the Dr and applied the prescription. None of the natural remedies seemed to control the discomfort of the itchy eczema skin fast enough.
Gradually over the years the itchy skin has got less. He was waking up between 3-5 times a night with angry dry skin. My friend, Michelle Tyson from SEED Skincare suggested that I use Avocado oil and Macadamia oil which has the Omega 3 fatty Acid in it that seems to be what my sons skin needs because he has been sleeping. It’s fantastic.
I first used straight cold pressed extra virgin Avocado oil bought from the Grocery store which I love. It does have a tendency to sit on the skin and take a while to absorb so it can get on your clothes and linen, which means it stains. Working it into a lotion may be preferable for some.
Annual assessment wit Occupational Therapist. Son would not take his shoes off when asked to do some standing/balancing tasks! He said he did not feel comfortable to do it so …. He was not pushed to do so and that means???… He was trying to manipulate me (his mother) to buying him an x-box . I won’t buy an X-box. I sold the last one as I thought my son was getting too anxious using it.
I thought the X-box and computer raise his anxiety level and he is acting out content seen on the X-box. The $400-$600 X-box is not worth it! I remember from times past having to ask him over and over again to turn the computer or x-box off! “Just one more minute!” he would say. There is only so many times you want to say that to your son.