Horse riding and Immersion Therapy

My wonderful No.1,  is in his own world under the water with Immersion Therapy with a company called ‘Determined 2″ or “D2” for short. A place where the sounds are suspended and the only sound to focus on is the sound of your own heartbeat under the water. He is excited to go and looks forward to it. I believe he likes to wear his wetsuit which is tight and firm pressure sensation for his body. I am so relieved that we found it. It is a place where we can walk under water. His self confidence is getting better and it is great to see. I am so glad we found this organization which meets his sensory needs. It has been a major effort to  start this routine and hard on me but I have wanted so much to help him find something that he loves to do and that is his. Something he can relate to and be proud of and perhaps it could turn into an occupational interest down the track.

I am also very happy that my No. 2 Kiddo is finally able to participate in horseriding actrivities  through another organization as he loves it and it seems to satisfy the stim that he has and the pressure that he needs when seated on a horse. I originally thought this activity was not possible, but it is and we have found a way to do it and it most likely is something No. 2 Kiddo may like to do all his life. Both boys were riding horses last week. Honestly I think it is one of the best activities to do and learn. I am very pleased. It has been hard work to find these activities that are relevant to my children. I am so very pleased that they are doing them.

 

Written and Authorised by  Jane Muras, 4 Henry st, Hectorville, SA 5073 Candidate  for Hectorville Ward CCC 2018

 

 

 

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#Clothes

He must wear the exact same clothes every single day to “feel right”! He tells me all the time. It means I must wash every night, thank goodness for the dryer. He has to wear his clothes to bed because it is too stressful to go through the sensory hell of putting them on in the morning along with having to eat breakfast. He always has toast with tomatoe sauce or plain rice bran butter, sometimes nutrigrain.

Written and Authorised by  Jane Muras, 4 Henry st, Hectorville, SA 5073 Candidate  for Hectorville Ward CCC 2018

 

#SortaSuperMummish

I am trying to do the best I can and do all the things that need doing to stay #SortaSuperMummish. I have had a cry because I can’t fulfil the expectations of my own ego. I remember my Dear Dad who is no longer with us telling me to brush my teeth, look after my teeth. I have had a cry to my own Mum who points out that it is not the end of the world, it’s just a filling. Well, 8 actually. The kids going to have a mouth full of metal, I’m sure of it. We joked when he had his first Dental work that this was his pirate tooth, and he showed it off. We were all proud of his pirate tooth. If you have it then flaunt it right. I didn’t expect the trend to carry on. My husband pointed out there is far worse conditions so I must be thankful we have hopefully nipped it in the bud, or the rather large holes in his molers to prevent the nerve becoming exposed.

My Bundle of Joy was really good with his Dental work today, the dentist did allot of work, she had to numb his mouth with a needle and drill and Wow, he let her do it. Unfortunately, he has 8 fillings in his mouth at the moment, not because I don’t care about brushing. He has visited the dentist three times. At the end of his appointment the dentist told me she had to do four fillings which is two more than we thought. He handled it really well, my brave boy.

The dentist has told us to stop with the fizzy drinks as carbonated water and sugar effect the teeth, if he has a soft drink, then we have to wash his mouth out with water. We are to limit sweets. Well, he loves the donuts!  If he eats a sweet with sugar he has to brush and floss because he has soft teeth. His teeth are first teeth. Baby teeth, and you would think this does not matter if he loses a tooth or two because he will get new ones. But having the teeth there shape his mouth for the next teeth apparently.

So I put my hand up for being the worst mother in the world. Feeling completely incompetent that I find it hard to argue with my little sweety-pie about  that he has to brush his teeth. I insist and check up and when we found out he needed to floss well, then he did. or I did or his father did. Before 9, months ago we were only brushing once a day and I thought that was enough but no! We ramped it up to fit twice a day brushing in. How to fit it in! I’ve got a problem solving mind, we will take spare brush and tooth-paste in car on the 50 minute drive to school.

And now we must floss as well because it’s not enough. I insist that he must brush, he gets all stroppy not letting me, “Ok, no more iPads!”. Which is the mantra used in my house to get malleable children. “Oh noooo!”. The kids protest and reluctantly do as they do not want. Everything takes one million years.

Trying to educate the young Oscar about the importance of looking after his teeth is hard. He says he does not care. I tell him that he will care once his tooth has rotted so much his nerve is exposed. That is a great pain indeed.

I do remember some years ago it was identified the first time he had some filling work done, he had to see the paediatric dentist who sent him to the Wakefield hospital so he could be put under a general anasethetic to get the first filling done because some decay had been detected.  We were wary of it. I remember we could not commence with procedure on the specific set date because he had a cold which was a contra-indication for surgery We had to go back a second time. While my bundle of joy was having the procedure Mum and Dad had a coffee downstairs. We were back with him when he opened his eyes to love the little cherub.

Written and Authorised by  Jane Muras, 4 Henry st, Hectorville, SA 5073 Candidate  for Hectorville Ward CCC 2018

 

 

The gloves, play the piano and move your fingers

A few years ago bandaids and gloves had to cover his hands. It seems that he had scraped  his hands at school which for Zak at the age of 7 years and higly sensitized to his environment, he had only just returned from a trip to Darwin. But then he came back to Adelaide weather and because he had scraped his hands he had somehow decided that he would cover his hands with bandaids. He used allot of bandaids. He went through allot of packets. The school sopoke to me several times about the amount of bandaids he was using and could he please bring his own suppply as they needed to keep a supply for other students as well. He used to wear the bandaids for many days and would not want me to change them. One day I took off a bandaid and found that the sticking plaster was causing a rash on his skin. This was not helping at all. In an effort to  think about how to prevent him using so many plasters I thought I had come up with a brainwave. I would substitute the bandaids with gloves. This turned out to be not a solution at all.

He loved wearing the gloves. He wore them non-stop for 3 months. Eventually I worked out that I could not buy just any old glove with a mixed fabric material. The material had to be cotton and it had to breathe.  My sons hands got sweaty from wearing the poly fabric gloves and he did not have the will to explain this to me. One day I finally got his gloves off of him to find  his skin peeling . This upset me greatly, I was not going to sit by and let this phobia he had hurt him so I changed gloves. I realized the material used to make the gloves was making his hands sweaty. Boy oh boy,  was it hard to find cotton gloves. In an effort to dry wet gloves we used a blow dryer, this had a warming effect on the glove also.  It seems that he also thought he had horrible hands possibly because they felt extra sensitive. An extra teacher was called in at the time to help him understand how he was feeling. Constant wear of gloves poses a few problems when it comes to washing the darned things.

I didn’t understand what was happenning only that I wanted him to be comfortable, Then it seemed to occur that because it had grown cold during the winter months that the gloves had to be warm when he put them on, so they were dried in a certain section of the house before he put them on to go to school. This went on for quite some time  or there would be loud protestations from Junior. Well, requests to dry the socks started happenning at school, when he was due to come home from school, and the hair dryer – oh the hair dryer! I just determined I would not put up with it any more and I told him that I was not going to do it any more. He screamed and shouted at me about it because I wasn’t, I guess, assisting the set routine. I did not want him to stop using his hands so we started on the path of challenging him to work his hands and fingers on the piano. Hopefully music will do the trick.

Written and Authorised by  Jane Muras, 4 Henry st, Hectorville, SA 5073 Candidate  for Hectorville Ward CCC 2018

 

 

Navigating social interaction and holidays

When No.  1 Kiddo (currently 10 years) was very young, maybe 3 years old, went bouncing on the jumping pillow at a Caravan Park on a holiday. He wanted to bounce all the time I remember him wanting to watch prerecorded Bear Grylls videos over and over again as if they were instructional video’s on skills needed to face the day.

When No.1 Kiddo was 5 years old I remember him playing on the jumping pillow at the caravan park holiday and he found some boys to hang around with who No.1 Kiddo thought were his friends even though they clearly found him an annoying tag along and made fun of him. This made me angry No.1 Kiddo did not recognize  the unkindness in these boys and he wanted me to go away. I cautioned No. 1 Kiddo, wanting to protect him but also realizing that he has to find his own way in navigating this social interaction.  These were mean to him.  They made fun of him and took advantage of No.1 Kiddo’s naivety and he couldn’t understand that they weren’t being friends. HE could not understand that they were not looking after him.  No. 1 Kiddo used to jump on the jumping pillow. I remember when he was 5 years old and started school.  (Post in progress)

Written and Authorised by  Jane Muras, 4 Henry st, Hectorville, SA 5073 Candidate  for Hectorville Ward CCC 2018

 

 

Sub catgory list of earlier post/topics

 

53. Autism and Problems at Mainstream school.

52. How did the kid learn to read so early?

51. Autism: Sensory Processing Disorder and Socks!

50. Murphy’s Law! Today: It’s ones of those days!

49. Autism Siblings.

48. Writing for writing’s sake!

47. Car Troubles and Laughter!

46. Comedy Radio, Laughing and walking to school!

45. Mum! Stay still I am putting a chip up your nose!

44. The 5 year old.

43. Let’s take our Xbox controller to school!

42. Autism and the 2 km walk to school!

41. Where is the demarcation line?

40. My son wants an X box!

39. Life in another Language: Auditory Processing Disorder.

38. Drama and the kiddo!

37. Don’t Let The Bastard’s Get You Down!

36. Useful Bedtime techniques for our kids.

35. Laughing and a loving family life.

34. Calming ideas for a stressed out kiddo.

33. Respite for Parents.

32. Feeling Isolated, Parental Depression, Feeling overwhelmed!

31. Autism: Clothes and Socks.

30. We have to trim your nails: “No Way Mum!”

29. “Can we wash your hair?”

28. Autism: Gloves and Bandaids.

27. Autism: Shoes, Socks and Clothes.

26. Cost of Education and Autism.

25. Swimming week 2014.

24. Autistic Meltdown 2014.

23. Diagnosis Days 2014.

22. Autism and School Socialization.

21. Why? Why? Why? Diabetes 2!

20. 9 yr old. I want an X Box.

19. Real life experience in the caravan.

18. Singing lessons? Martial Arts?

17. IPad Parental controls and Daily household chores.

16. 3rd pregnancy: Miracle Baby Jack.

15. 2nd Pregnancy: Miscarriage.

14. “No, I don’t know want to take my shoes off!”

13. Pregnancy no. 1: Birth of a miracle boy.

12. How to Survive on a camp trip with Bear Grylls!

11. Understanding signs and symptoms of Disgraphia.

10. “New Shoes! It’s Groundhog Day!”

9. Useful resources: Autism Support Groups/Reference books/films.

8. I am so proud of my Autistic son.

7. Autism and bedtime techniques.

6. Law mowing and being tired!

5.Writing therapy for parents.

4. National Disability Insurance Scheme (NDIS) and coordinating therapies.

3. Ok! Let’s talk about Autism, Poo, Toilet training and Sensory Processing Disorder.

2. Ok, let’s talk about Autism: Fixation and Obesessive Compulsive Disorder.

1. A full on Meltdown: I did not expect!

 

Written and Authorised by  Jane Muras, 4 Henry st, Hectorville, SA 5073 Candidate  for Hectorville Ward CCC 2018