Sub categories list

 

53. Autism and Problems at Mainstream school.

52. How did the kid learn to read so early?

51. Autism: Sensory Processing Disorder and Socks!

50. Murphy’s Law! Today: It’s ones of those days!

49. Autism Siblings.

48. Writing for writing’s sake!

47. Car Troubles and Laughter!

46. Comedy Radio, Laughing and walking to school!

45. Mum! Stay still I am putting a chip up your nose!

44. The 5 year old.

43. Let’s take our Xbox controller to school!

42. Autism and the 2 km walk to school!

41. Where is the demarcation line?

40. My son wants an X box!

39. Life in another Language: Auditory Processing Disorder.

38. Drama and the kiddo!

37. Don’t Let The Bastard’s Get You Down!

36. Useful Bedtime techniques for our kids.

35. Laughing and a loving family life.

34. Calming ideas for a stressed out kiddo.

33. Respite for Parents.

32. Feeling Isolated, Parental Depression, Feeling overwhelmed!

31. Autism: Clothes and Socks.

30. We have to trim your nails: “No Way Mum!”

29. “Can we wash your hair?”

28. Autism: Gloves and Bandaids.

27. Autism: Shoes, Socks and Clothes.

26. Cost of Education and Autism.

25. Swimming week 2014.

24. Autistic Meltdown 2014.

23. Diagnosis Days 2014.

22. Autism and School Socialization.

21. Why? Why? Why? Diabetes 2!

20. 9 yr old. I want an X Box.

19. Real life experience in the caravan.

18. Singing lessons? Martial Arts?

17. IPad Parental controls and Daily household chores.

16. 3rd pregnancy: Miracle Baby Jack.

15. 2nd Pregnancy: Miscarriage.

14. “No, I don’t know want to take my shoes off!”

13. Pregnancy no. 1: Birth of a miracle boy.

12. How to Survive on a camp trip with Bear Grylls!

11. Understanding signs and symptoms of Disgraphia.

10. “New Shoes! It’s Groundhog Day!”

9. Useful resources: Autism Support Groups/Reference books/films.

8. I am so proud of my Autistic son.

7. Autism and bedtime techniques.

6. Law mowing and being tired!

5.Writing therapy for parents.

4. National Disability Insurance Scheme (NDIS) and coordinating therapies.

3. Ok! Let’s talk about Autism, Poo, Toilet training and Sensory Processing Disorder.

2. Ok, let’s talk about Autism: Fixation and Obesessive Compulsive Disorder.

1. A full on Meltdown: I did not expect!

 

Autism and Mainstream school

 

It is my understanding there is in 2016 approximately or more 3400 children with Autism in South Australian Schools.  More than 50% of children and students with Autism are enrolled in a school without a  specialist unit or specialist education teacher. The Department of Education policy for a mainstream school is to have  between 21 and up to 36 students per class with one teacher and a school services officer.

I am feeling raw. I feel like I coudn’t organize a chook raffle! Things are fraying around the edges. I’m starting to get cynical.

What is the bigger message here on the grand scheme of things? Is it to learn to fit in, so the societal machine keeps working? Is it that you have to learn how to deal with your sensory processing issues or else? Or is it that you are doing something if anything so you can fit?

My darling 5 year old child having trouble at mainstream school. It’s not the child’s fault. It’s not the teacher’s fault. It’s not the principal’s fault. Class sizes and the price tag associated with educating your child is a systemic problem. 5 years old. Autism Diagnosis. There is a policy of inclusion in mainstream schools but can schools provide if resources are already stretched. If classes are too big. If there is not enough attention given for the child with special needs. Is it because of money! I am Mum and advocate for this little Dude!

Do I park money with a limited budget myself, to start a treadmill of tests which will tell us what? Haven’t I done this before?  I take him to get his hearing checked. Heavens above! What good will that do? It’s all a matter of  perception. A two day suspension disrupts the life of a busy/stressed special needs parent. The little treasure says he gets bored with what the teacher says. So he wanders off. “Be where you are meant to be” is the mantra repeated at school.

I’ve told both of the kiddo’s if there is no school duties for the day/ then there is home duties. As a deterrant! But it seems to be a sweetener!

Each child has a bucket and they put a rocks in bucket for duties completed. A certain number of completed duties. Then they get some free time. Who is familiar with this positive reward training method? Wash the dishes. Wash the clothes.  Mow the Lawn,. Take the rubbish out! Thanks kiddo!

Turning myself upside down and inside out to try and make things fit! They don’t. Trying to do all the different suggestions from respective therapists. I’m worn out! Where is the coffee because I am already tired of this crap!

Occupational therapist ($120/wk) says that his sensory needs are met at home as the house has been turned into a play sensory gym as much as possible. Pay more attention to his emotional needs. Well, kiddo is telling me that he hates going to school. How do you deal with that little pearl?

I feel as though I am walking through quicksand! What to do? I guess, we will find out his hearing level from the audiologist ($80 one off appt). Oh yeah, we have to get an IQ test ($100-300 one of appt). I feel as if I’m sending therapist on a holiday to Accapoco. I’m already doing the $167 Psychology, Speech Pathology and $57/wk Social Skills group. Therapy costs a fortune.

It’s Mum’s taxi, on steroids, driving them to this that and the other. Where’s the money for the petrol coming from! Hold on I’m losing the plot! Driving here, there and everywhere. Co-ordinating school and therapy timetables making sure that therapists all talk and understand the plan of action. I’m not even sure what the Plan Of Action is but I am doing as I am afraid of not doing anything.

The kid is very smart. He is starting to snort like a horse over the last month or two. I have a little trotter running around the house. I wonder if I did assemble a race track around my house if that would do us any good.

I make a booking at Dr’s because maybe he has some difficulty with ears, nose and throat. Knows how to work the teachers. Knows how to not follow the rules of engagement by dancing on the cupboards and table-tops. Knows how to not do what one is told.

Parent: What is the matter child? Kiddo: I don’t want to go to school. How do you tell a 5 year old that they cannot stay at home all day. Chores or else! No problem Mum! It’s a joke! How do you tell kiddo in a way that he understands that as an adult you need to look after yourself/ have time for yourself to exercise/knit/do your thing to stay healthy for them? And also most importantly stand up for yourself.

The 5 yr old kiddo is a bit easier to get out the door than his brother. Both anxious when they leave the sanctity of the house. He does not pick up on the rules of engagement. He doesn’t see the social cues. He finds it difficult to understand that the things he does at home, generally, he can’t take transition objects to school. He doesn’t have any emotional attachments to kids or the teachers to make him want to go to school and want to be there.

 

 

Autism Car troubles and laughter

It’s raining yet again.  Just as I am due to do the school pickup after a lovely swim and the electrics in my car have given up the ghost! I can’t open the door! It’s raining! Great! This is just great . Thankyou Murphy! It’s Murphy’s Law. This Law is one I am well aquainted with. Why? I’m going to listen to some comedy! Suddenly Nanna drives by with her key. Saved by the bell!

 

 

Autism-Comedy radio, Laughing and walking to school

Relief! I feel like we have struck a gold mine. After years of struggling to get the child to get dressed in morn. Get him fed and out door to school it turns out walking the 2 km to school is no sweat and even enjoyable. Kiddo wants to do it!!

To help him dress this morn I turn the music on, no heavy rock, R&B rules!  I remember last year when we trialled a family comedy station on Pandora which the whole family found extremely funny. Laughing is infectious we donned our earplugs, mum and son arm in arm and walked and laughed all the way to school. Very cool!

 

 

Autism Mum, stay still. I am putting a chip up your nose!

“Why, are you putting a chip up my nose, son!” Son says  “I just want to tickle your nose!” We had a good walk at the Zoo. The next day and It’s time for a family walk as I am tired of hearing/explaining to kiddo why I will not let him play an MA rated game called “Rainbow Six Siege “.

This is a tad ironic that he wants to play military mayhem games as both boys are adamant they don’t want to grow up and I suppose take on the personae of Peter Pan. But the 9 yr old wants to play games that are not suitable for his age.

I had a brainwave about it this morning and suggested we make it real by making it real in building Lego scene/ or Maake up a Rock and Roll song about it because he has been raising his voice about it as if constantly repeating to his parents he wants it then it will happen. Is ABA therapy in reverse? Lol. Oh dear! For goodness sakes!

What I did notice is that he has worked out how to write “Rainbow Six Siege” in the dirt, on the dining table- this kid can do stuff when he puts a high value on the outcome so I think my modus operandi a will be getting him to write a whole page of game titles that he really loves! Wish me luck?

 

 

Autism-The 5 yr old

Quiet and lovely. Very smart and listens to everything. Likes to repeat his brothers sayings. Loves supporting whatever his brother says to do. Rubs his legs together all the time. He seems to need to do that. When the two of them start up then you can’t shut them up because they spark off one another talking computer games which are not allowed as ratings are too high. Some years ago it was “Five Nights at Freddy’s” then “Marketpliar” then something else and most recently it’s Tom Clancy’s “Rainbow Six Siege”.

I think they like to hear the repetition of words. And I think they like to hear Mumkeeping the boundaries ” No, you can’t do that Blablabla”.

The five year old is more flexible.

 

 

Autism and Let’s take our computer controller to theatre class! 

He came home last week and was having fun with his brother playing games he learnt. But this week was a struggle getting him here. My sons worldview is that he is waisting valuable time where he could be playing computer games. Let’s take our computer  controller to drama class.

A sleepover at a friends house last night has meant that his sensory experience of his clothes is different today. He seemed fine with it today when dropped at school with friend but anxiety took over/stomach ache and not feeling well meant he could not stay at school. He could not go on school excursion.

Tummy bug going around school so give him the benefit of the doubt. Chuck a sicky! The only thing to do, right! So we feel OK by end of day so as soon as we go out the door to drama the anxiety starts/ Hyper sensitivity to clothing. He’s managed to try the theatre class and is playing theatre games. Phewwww! He’s engaged after some resistance. Time to read !

I think they are enjoying themselves in class yelling loudly which is right up NO. 2 Kiddo’s alley!

 

 

Autism – How did this kid learn to read so early?

I remember spelling signs out as they sounds we walked along on the daily walks. I asked him to repeat the words.

Hubby thinks that the letters on the page became characters “with a life of their own”. My 9 year old can read from the word go but my 5 year old is having challenges in this area. Both Autistic. Both very different. It’s all to hard for the 5 year old.

The 5 yr old finds It difficult to concentrate as there is too many variables to distract attention away from putting two or three letters together (segmentation and phonics). What is the key to undo this lock???

I put the visual representation of awards/certificates on the wall to show these visual learners they can do it!

 

 

Autism and a 2 km walk to school try out!

Waking up and full of boundless hope and enthusiasm at the benefits of a 2 km walk. It works. It satisfies this 9 yr old pacer.  It was a light beaming from the light house that happens occasionally when one is muddling through the stressful darkness of daily life. By the way, it’s not a punishment for not getting in car by 8.30 am.

This afternoon I’ve been pipped at the post by his SOS.  When I asked school support teacher curiously if walking made a difference before school, and during the school day. She shrugged like she wasn’t sure! I thought it was sure as eggs I had done the best thing since sliced bread.

I walked my son and my dog, the 2 kms to school today and when they got to school the jitterbugs and lack of concentration was all walked out. Both boys had used up energy and sat down to engage in the class when they got there. I’m stoked! Your’e thinking: Well, How obvious is that!
What was amazing to me was that he wanted to do this! Even  comfortable doing this. This is bribe currency in the making. Why oh why by did I not continue taking kiddo to little Athletics some years ago! Was it a Sunday morn sleeping! Oh dear! How to work it?I am just tired now.

The 9 yr old had done the walk quite a few times with Dad, but it was my first time walking that distance to school (it’s usually the case that he hates going to school/leaving the house/ lots of stress) with the 9 yr old.

At the last minute the 5 yr old decides  he wants to come too. So we do (!) cause movement rules and it’s non digital! Of course we are late to school but the cost/benefit ratio favours life skill learning from observation of unspoken rules/crossing road at lights/ building construction etc.

5 yr old can walk no more after 1 km and who arrives just on time as its super dad with his super timing. Drives us the rest of the way to school.

Dad:  It took me so long to get here because I could not find you guys and I couldn’t find my keys. !!!